#cystic fibrosis
when i’m feeling sick the hospital is actually a nice place to be. i don’t have to worry about any of my meds and i get to just nap and watch tv and do online puzzles and just let my body get better. sometimes it’s overwhelming and sometimes i feel lonely but as i get older i understand that sometimes it’s the best place for me to be.
- Claire Wineland
Sometimes I get jealous of people with more visible illnesses than my own because people take their health problems more seriously. Like, maybe my parents would listen to me if I needed a wheelchair. Maybe my teachers would take me seriously if I had a service dog. But because I appear to be perfectly healthy on a day to day basis, people think I’m exaggerating my symptoms or that my CF is somehow “less severe” than other people. I am thankful for my relative health and not being dependent on aids, but some days I just wish I was a little sicker so that people would listen to me when I tell them I don’t feel well.
Accepting your limitations when you have a chronic illness or disability doesn’t mean you’re lazy or pessimistic. It’s more than ok to acknowledge and respect the fact that there are things you just can’t do. Don’t listen to anyone who tries to put you down or make you feel guilty for saying “no” when you aren’t able to do something.